"The Boy Who Loved too Much" Williams Syndrome

Williams syndrome is a genetic disorder resulting from missing chromosomes of an individual's DNA genome.  The disorder presents itself with physical traits of short stature, pear shaped body types tending to being overweight and "dwarf" like facial features of enlarged foreheads, pointy chins, gapped spaced teeth and flat fingernails.  The common disabilities stem from low I.Q.s, enlarged aortas & heart issues, persevating on objects (vacuums in particular), anxiety & phobias and a propensity for a rapacious need for physical & social contact.  People with Williams syndrome have little impulse control and a compulsion for physical contact with everyone; hugging everyone, inlcluding complete strangers.  Youngsters with Williams are unflappable, happy & guileless which renders them vulnerable to being abused. As adults, those with Williams need ongoing support & supervision.    Reporter & author of "The Boy Wh Loved Too Much" Jennifer Larson,  ponders life in a constant state of euphoria and its ripple affect on humanity.  They love & trust everyone unconditionally.  Would this be a lifestyle to aspire?     follows Gayle, the mother of Eli who has Williams & shares Gayle's hopes, heartaches & struggles.  First, the ideal of an irrepressible spirit of joy appears to have its appeal.  The reality of caring for Eli as a child, adolescent & planning for his future is all consuming, exhausting, frustrating, heartbreaking and relentless worry.  A parent with a child with a disorder that limits their indepence & abilities must relent their hopes for what parents of healthy, mentally capable children take for granted.  Gayle's life & Eli's became irrevocably entwined and she realized that this was harmful to both in the long run.  The social impulse for unconditional love for humankind is not a gift.  The social drive lacking the cognitive ability to use it effectively is a major obstacle to fitting into society that is so earnestly craved.  The author did an exceptional job evoking empathy & understanding the stresses, obstacles and of living with Williams and living with a person with Williams.  The various responses from those who interacted with Eli ranged from derision & disgust to compassion & empathy.  The salient achievement of "The Boy Who Loved Too Much" was  empathy for others and a scientific understanding of the Williams disorder.  I recommend this intelligent & poignant book for everyone.  The one failing was the unnecessary & religious proletyzing Larson included in her final chapters.  "Christians make an effort to embrace the same openness, trust, and wonder found in Williams syndrome following Jesus' admonition...". The quote Larson chose in the beginning best outlines the humanity found in this ephiphanous work.  "We got a future.  We got somebody to talk to that gives a damn about us...Because I got you to look after me, and you got me to look after you." (J Steinbeck)